Walk on Saturday benefits Neurofibromatosis research

1:57 PM, Sep 15, 2012   |    comments
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LYMAN, Maine (NEWS CENTER) -- The family of a 9-year old girl who has a genetic disorder is helping raise awareness and money for research they hope will one day lead to a cure.

Natalie Ricker has Neurofibromatosis.

The condition, also known as NF, causes tumors to grow on nerves anywhere in the body.

The condition first shows up with coffee colored spots soon after birth.

Right now Natalie has 9 tumors. While they may not appear disfiguring, they can lead to serious complications including blindness, deafness and cancer.

Natalie also suffers from Scoliosis, low muscle tone and stamina.
To help raise awareness about the disorder which affects about one in 2,500 people, the family is organizing a benefit walk this Saturday in Biddeford and Brunswick.

The money from the walks will go to the Children's Tumor Foundation which funds research into finding a treatment for NF. The fourth annual NF 3K Walk will be held this Saturday at the Androscoggin River Path in Brunswick and the Eastern Trail, located behind Southern Maine Medical Center in Biddeford. Both walks will take place at 9 a.m. If you would like more information on NF Walk program you can go to http://www.nfwalk.org

NEWS CENTER

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